Saturday 1 April 2017

Growth hormone injection - day 2!

So when I said in my last blog that we were ready to rock 'n' roll with regards to G's daily growth hormone injections, I was wrong. So very wrong! Umpteen phone calls later, one desperate cry for help to the Turner Syndrome Support Society, and we finally resolved the problems (funding, postcodes, small hospital - you get the picture). The training date was set - Friday 31st March.

Thursday was an interesting day to say the least....the main theme of the day was that Friday DID NOT come after Thursday. Despite singing her days of the week song, she then vehemently denied Friday as fast approaching. On top of this, there was a tantrum about everything. LITERALLY. Me coming down the stairs first, opening the curtains and the sun being too bright, shoes, food, everything. Eventually the root cause of the issue was identified - the endocrine nurse was coming to train us up, and start the growth hormone injections the day after. Friday.

Pre-school was a welcomed distraction on Friday morning, as was the iPad when G returned home. Shortly after lunch, our designated nurse arrived, and the tears came thick and fast! Thankfully as there was some paper work, as well as training on a pretend bum first, G soon realised that nothing bad was happening. Yet. Mummy, Daddy, and 3 family members took part in the training, whereby we all tested some dummy injection pens on our own bodies. At the end of the session we signed the paper work to state that the training had taken place and hey presto we were done, or so I thought. But our nurse needed to see us actually inject G before he left....
Well, I'm surprised that our windows didn't shatter with the screaming that ensued. I was chief hugger (I guess it's the child-friendly version of 'pinner-downer'), and daddy was injector. Only G was so strong and so determined to not be injected that the needle came out THREE times, and the nurse stepped in to help us to keep her still. Fourth time lucky, and we were done. How I did not cry myself I do not know!  Pregnancy hormones + the thought of causing pain to your precious child = potential blubbering mess! (and actually, I was later that evening).
HOWEVER, within 5 seconds she was up, and asking for her surprise. Within two minutes said surprise was open, and a sparkly pair of pink high tops were already on G's feet. Ten minutes later and we were happily waving goodbye to our visitors. One hour later were eating dinner in our local Italian. Emotion overload!

Fast forward to this evening. Our new routine under way - bath time to soften the skin and calm G down, and then injection time. G wanted to use the dummy pen to inject Lola (the training dolly) first, and then the tears came. This time accompanied with pleas of 'please don't do it, I don't want my injection, it hurts!'. Where was my rock to crawl under and hide??  We rubbed G's skin with the red, sparkly magic ice cube which we had made earlier in the day (thanks Gem - amazing idea), and it was hug time. Injection went in first time, we counted to the magic number of six, and bingo. Tears stopped immediately, and G announced that it hurt far less than yesterday, in fact the magic ice cube made it not hurt at all. And Daddy already seems a pro at administering it - he's doing far better than I would. Progress...The nurse thinks that it will all be the norm within 7 days, and that the tears will be a thing of the past. We'll see!

In other news:
- She is four! How is she four? It feels like she has been part of our family forever, yet it only seems like yesterday that I was worrying each day that I would miscarry.  We adore our little G, and made it our mission to ensure that she had the best birthday, and didn't she just.

- We had a lovely family weekend away to the caravan in Norfolk. This time we had been upgraded, had lovely balcony and were located in the heart of the woodland. With wildlife on our doorstep, G was up and watching from the balcony at 5:30am every morning. Now I love a good squirrel, and a rabbit or two, but come on G - it was our holiday!

- G has an ENT appointment this week, the first appointment in a good 7 weeks, which is nice. one ear infection during the whole of the Winter, so I expect it to be short and sweet and for them to try and discharge us (as they often do).

- I was spoilt rotten on Mother's day, and one of the best presents was having my car washed. It's a real treat, trust me!

-G is very keen on helping us to prepare for the arrival of her baby sibling. From preparing my hospital bag, to constantly asking what babe is up to, she sure is the doting sister already.

- Thank you for all of the support we've had in the run up to the injections-from cards and mini gifts through the post, to helpful hints, videos messages and general love. G has felt very special and we've much needed the support at times.

So, that is us. I am off to remove the glitter from my hands...downside of magic ice cubes :)

LOVE YOU G!





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