Friday 19 February 2016

I photographed a poo....

I know what you're thinking.....gross, vile infact,  but it was a momentous occasion.
If you've potty trained a child at any point in your life,  I'm sure you'll share my enthusiasm for all things poo and wee (so long as not in pants or on the kitchen floor!). So after 8 months of can she/can't she, we've established she can. We're incredibly proud of this milestone,  and celebrated it with a trip to the museum, lunch out with Daddy, and a new set of sparkly pants. Hurrah!

Half term has been fairly manic for us. Yet another ear infection (I'm not sure she fully recovered from last week's infection), yet another trip to the Doctor, and yet another series of 39.5+ temperatures. Boy those high temperatures scare the heck out of me.

This week also saw a visit to G's paediatric endocronologist and thank God for this fantastic lady. I fire away with my million and one questions, state that I categorically do not want to set eyes on the new ENT ever again, and demand tests to determine why G is always ill. She listens intently, smiles politely, and fulfils every request. Even when the appointment is seeming to draw to a close, and I pipe up with 'oh and can we just discuss....' she still remains polite, professional and genuinely interested in our concerns.

The big news now is that G's growth has virtually stopped. Almost 12cm last year vs 1cm in 6 months. That coupled with some news regarding Gs bones (via blood test) and we ended up in the x ray department getting a routine x ray of G's wrist to check for bone density. 
She will now be seen by our consultant every 3 months, and growth hormone injections are potentially within touching distance.
Thyroid function is also going to be closely monitored because, whilst it's within the normal range,  it's teetering close to the edge.

With regards to the dreaded Ear Nose and Throat saga, we are hopefully being referred to a friend of our endocrinologist who-we are assured-is also an excellent paeditraican and incredibly understanding. As I am much calmer than when I last blogged, I can now elaborate on why we refuse to see our new ENT again.....it went a little something like this
'All kids get infections....all kids are snotty. ....10 years ago we'd have routinely suggested grommets and other minor surgeries but now the NHS has no money.......back when I was a child we played on the streets with streaming noses and it was the norm......ear infections won't cause any hearing loss.....her ears are ok now......well the TS society would say that won't they......I know you may know more about Turner Syndrome than me but.....'.
To add insult to injury ' oh, and LUCY won't have anything considered anyway whilst she has a heart condition'

So now you see why I refused to be within 10 feet of said consultant. Watch this space on ENT developments. I will do anything to get the best care for my amazing, beautiful, loving little babe. Dare anyone stand in my way.

In other news:
● We've got our first scheduled appointment at the sleep clinic.  A much anticipated appointment. Three years of no sleep gets a little tiresome....!
● G turns 3 in a few weeks. Three years old. How?
● Our first ever trip to the theatre was a success, for us anyway. G's pirate obsession saw us at a local production of Treasure Island, and all was going swimmingly until Long John Silver turned up. We never did find out who got the treasure.
● Kins- we've all been renamed Kins. Mummykins, Winniekins,  Daddykins, you get the picture.
● Why is fast becoming the longest obsession yet,  and the questions are just getting harder to answer in toddler speak. Why can I sometimes see the moon in the daylight?  Why is the moon sometimes a circle and sometimes a banana? Why do doggies sometimes go to sleep and never wake up? Gosh G, what will you be asking me when you're 5, 10, 15 years old?
Love how her beautiful mind works. Her incredible memory too.

Despite such a mad half term, I've loved every minute with her. Her smile, her giggles, even her cheeky little comments that push the boundaries. I'm so proud of who she's become in just 3 short years.  Especially when I think back to the numerous times we were told she wouldn't even survive. She continues to defy the odds and show everyone her strength and character.

So that's our round up, I best get back to watching James Bond before I have to start annoying hubby with catch up questions!