Back to square one!

I started writing this post on Monday...G hasn't had the best of weeks so I've not been good at finishing anything! 

Horrible heat 

I will probably get lynched for saying this, but we've well and truly had enough of the heat. G cannot cope, and nor can I for that matter! She's not sleeping at all, no naps, no regular bedtime, and being wide awake at 4am. Infact as I type this at 9:30pm she's wide awake after hours of screaming!

This time last year you'd have caught me out in the garden catching a cheeky tan, but not this year. I would however like the tan, just without having a melting baby. 

Reflux nightmare

For some unknown reason, after three weeks of relative calm, Gs reflux has returned. With a vengeance.  The wheezing, congestion, projectile vomit, screaming all evening, squirming, refusing some feeds. Our evenings are again taken up by viewing the local countryside....from the car. I'm not convinced her medication is helping one bit, and neither is the heat. But nearly 5 months in, surely we could be able to find a cure?! Or at least get it under control.

We are due to see the paediatrician at the beginning of August. Lets hope she brings her magic wand.

Ingrown nails

Girls with Turner Syndrome often have problems with ingrown nails. G had an extremely sore and slightly infected finger nail last week, which thankfully has gone of its own accord. However this week she has an even nastier toe nail. It appears to have grown into the side of her big toe and is rather red and swollen. What a bizarre outcome of missing a chromosome! 

Playing detective

G has been having showing some signs of intolerances this last three weeks. Given that she's only on super duper hypoallergenic milk, and milk thickener, there's surely only got to be one culprit of the two. The Gp suggested changing her milk, but after doing so three times already, I've decided to change the thickener first. Lesser of two evils and all that. After a week of no diarrhoea I'm now trialling the thickener again just to double check. This little monkey is going to be intolerant to everything at this rate. 

Happy times too...

G still beams at us first thing in the morning (albeit at 4am), loves to talk to us, and is getting more mobile by the second. She's loving her door bouncer, is extremely close to rolling over, and generally won't stay still. She even engaged in some wrestling with her buddies whilst us mothers sat and drank coffee (and took plenty of snaps of course!).

My aim for the next week....To continue to enjoy the weather, yet keep my monkey cool, and enjoy the good things to come: Mine and Tim's first wedding anniversary next weekend. We are going away for the weekend and leaving G in the capable hands of nanny and grandad. Lets hope things have got better by then!

It's also Tim's 30th birthday soon. I still stand by the fact that bringing our little sausage into the world is his birthday/anniversary/Christmas present for at least the next year! 

Remembering how blessed we are

It's been over two weeks since I last blogged and we've been super busy. At 18 weeks, G is changing everyday. She's desperately trying to master new skills such as sitting up unaided, rolling over, and thumb sucking! And she's now become an expert in cooing, babbling and bouncing. 

Counting our blessings

This last week I've very much been thinking of a family and the sad loss of their brave daughter who had Turner Syndrome. This family I do not know, but I do know of them due to a friend. They sadly lost their daughter at 9 days old due to complications with her kidneys and lungs. This beautiful babe battled against the odds during pregnancy, as all Turner  Syndrome babies do, but sadly was too unwell. I've thought of them every day since, and its been a stark reminder to us of how truly blessed we are to have a healthy G with us. Several times this week I've just sat and watched her, amazed at her battle, the odds, and how much of a miracle she is.

Piling on the pounds

This week G was weighed, and thankfully at 13lb 14oz, she is still doing well. So well infact that she has made her way from the 2nd percentile to the 50th. So well infact that they are now keeping an eye on her weight due to the rapid increase. So we've gone from having a tiny baby, to one that's packing the pounds too quickly.... Hmm. Given that she is feeding roughly 10oz less than other babies of her weight and age, we are slightly baffled! We will see how things are at her next weigh-in in 4 weeks time. 

Kidneys in the clear

Two weeks ago we took G for a repeat kidney scan. Given that we initially didn't realise she had a minor kidney issue when she was born, I was a tad apprehensive about the scan (Tim was taking it in his stride!). Upon arrival I asked what Gs previous issue was, and apparently the tubes from her kidneys to her bladder were slightly too wide. Thankfully the repeat scan showed that this was no longer an issue. Phew.

Cot catastrophe!

G has finally outgrown her Moses basket, so on Friday we decided to make the break and put G in her cot. She has been in her own room for about a month now, and her basket has been perched inside the cot, so we presumed that the final transition would be easy. How wrong we were! Three hours sleep. G decided that her new found space would be best used for rollover practice. As she can't roll properly yet, she spent the entire night getting very frustrated and not to mention ridiculously over tired.

Last night both of us felt pretty rough and couldn't handle another sleepless night, so G slept in her basket. Peacefully. All night. 

G 1- Cot 0

Medicine nightmare 

G is still trying every trick in the book to refuse her reflux medicine, and it's working. Her dosage has been halved due to then increasing the strength, but it's made no difference. As a last attempt I'm going to hide it inside some pear purée, but she's pretty clever and instantly recognises every other disguise we've tried. We'll see how pear goes down...

We have a relatively quiet week ahead, though I'm excited about taking G to school to watch my old class's assembly. That aside we'll probably be doing our best to avoid the heat, poor baby is not a lover of it, what baby is!