Gastroenterologist appointment
So in my last post when I said we were done for appointments for a while, it had completely slipped my mind that we had a long awaited gastro appointment. Dr Rao had referred us to another hospital she no longer felt she could help with Grace's reflux issues. So on Tuesday we entered the realms of a new paediatrics department. My goodness me, what an experience! The waiting room was buzzing with toddlers and teens, tables with games, and children desperate to put more glue on their pictures. For a children's department of a hospital, it was a pretty sweet place though. Our gastrienterologiat made me recall Gs little life so far, including pregnancy and birth (I need a small essay to hand anyone else that asks!), and what medication she's on. She concluded that there's no doubt G has a decent case of reflux and also milk intolerance. However above and beyond that we learnt very little more. Her meds can be increased as she's on the lowest dose, but you know what I think about giving her more drugs! We were also sent to see the resident dietician who specialises in allergies and gastro issues. He was nice and helpful. We are to now avoid wheat, soya, dairy and test egg before avoiding if need be . One thing I learnt is that tomatoes, strawberries, oranges and coloured fish contain histamines. Due to this very nature they'll bring on a rash but not necessarily mean the babe is allergic.
Anyhow, the long and short is that Gs barium swallow study will now be booked to check that there is nothing anatomically wrong. Apparently a ph study is not necessary as she thinks Gs acid levels will be low due to the medication on she is on. We will be back to see the gastro team in 3 months.
Breakfast.....baby wipes and bath flannels please mum!
Weaning hit a brick wall last week. We had lots of explosive nappies and various food culprits due to my eagerness to introduce new foods. So we are back to her 4 safe foods, and introducing one new food every 3 days. This week it's apple. Melon is still a firm favourite, however baby wipes seem to be THE best thing ever. The minute she sees the pack, whether it be at the end of the meal or during, then that is all she wants. She throws the biggest hissy fit if she can't have one. It's funny really, if she had her way she'd eat her bath flannel and baby wipes for breakfast lunch and dinner!
A reminder that she's mobile
G cannot crawl yet, however yesterday morning she gave me a stark and pretty scary reminder that she is still mobile. Without going in detail (and being judged for being an awful mother!) she had a minor tumble. Needless to say I was in a worse state than her, and after ten minutes of cuddles with mummy, Rosie rabbit and her dummy, all was right with the world. Lesson learned....
Turner syndrome support
I've recently discovered their Facebook page, and finding lots of useful nuggets of information on there. For instance, I joke that G is high maintenance as she's like a Duracell bunny, she cannot be still for a second. Constant entertainment is needed. After reading a post on the FB page, I learnt that many TS girls are high functioning. Two thirds of them also have sleep problems. That is G down to a tee. The Turner syndrome society also have an annual conference every October. I'm gutted that we are not in a position to attend this year, but very much looking forward to signing up next year.
So that's another update done. Time is flying and G is now 7 months old, ahhhh slow down time!! She's now sitting up unaided most of the time, apart from the odd face plant!
This next week we will be seeing several mummy and baby friends. G will also get her first experience of lots of people and loud music as me and my mum hope to attend our churches 40th anniversary celebrations. Hopefully she'll have lots of gorgeous smiles for all of the lovely people who prayed so hard for her during my pregnancy and her time in special care.
Ooo that's my cue to sign off, her hour long nap is over :)
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