Thursday 18 July 2013

Back to square one!

I started writing this post on Monday...G hasn't had the best of weeks so I've not been good at finishing anything! 

Horrible heat 
I will probably get lynched for saying this, but we've well and truly had enough of the heat. G cannot cope, and nor can I for that matter! She's not sleeping at all, no naps, no regular bedtime, and being wide awake at 4am. Infact as I type this at 9:30pm she's wide awake after hours of screaming!
This time last year you'd have caught me out in the garden catching a cheeky tan, but not this year. I would however like the tan, just without having a melting baby. 

Reflux nightmare
For some unknown reason, after three weeks of relative calm, Gs reflux has returned. With a vengeance.  The wheezing, congestion, projectile vomit, screaming all evening, squirming, refusing some feeds. Our evenings are again taken up by viewing the local countryside....from the car. I'm not convinced her medication is helping one bit, and neither is the heat. But nearly 5 months in, surely we could be able to find a cure?! Or at least get it under control.
We are due to see the paediatrician at the beginning of August. Lets hope she brings her magic wand.

Ingrown nails
Girls with Turner Syndrome often have problems with ingrown nails. G had an extremely sore and slightly infected finger nail last week, which thankfully has gone of its own accord. However this week she has an even nastier toe nail. It appears to have grown into the side of her big toe and is rather red and swollen. What a bizarre outcome of missing a chromosome! 

Playing detective
G has been having showing some signs of intolerances this last three weeks. Given that she's only on super duper hypoallergenic milk, and milk thickener, there's surely only got to be one culprit of the two. The Gp suggested changing her milk, but after doing so three times already, I've decided to change the thickener first. Lesser of two evils and all that. After a week of no diarrhoea I'm now trialling the thickener again just to double check. This little monkey is going to be intolerant to everything at this rate. 

Happy times too...
G still beams at us first thing in the morning (albeit at 4am), loves to talk to us, and is getting more mobile by the second. She's loving her door bouncer, is extremely close to rolling over, and generally won't stay still. She even engaged in some wrestling with her buddies whilst us mothers sat and drank coffee (and took plenty of snaps of course!).

My aim for the next week....To continue to enjoy the weather, yet keep my monkey cool, and enjoy the good things to come: Mine and Tim's first wedding anniversary next weekend. We are going away for the weekend and leaving G in the capable hands of nanny and grandad. Lets hope things have got better by then!
It's also Tim's 30th birthday soon. I still stand by the fact that bringing our little sausage into the world is his birthday/anniversary/Christmas present for at least the next year! 

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